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The Ava Grace Foundation

Supporting Families &
Advancing Research of UPD-14
(Uniparental Disomy of the 14th Chromosome)

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Families & Caregivers

Information about UPD-14, common signs and symptoms, getting diagnosed, and treatments. Get in contact with other families affected by UPD-14. ​​
If you would like to share your family's story with UPD-14 please contact us at : contact@avagracefoundation.org.

Medical Professionals

Here we share available research on UPD-14 and related syndromes, including symptomology, diagnosis, and treatment outcomes. ​If you have treated someone with UPD-14 in any capacity, please contact us to be included in a directory of experienced medical professionals to be made available to families affected by UPD-14.

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Join the Cause

Join us in our support of families, caregivers, and researchers. 100% of your gifts go towards the work of The Ava Grace Foundation and our ongoing projects.

Our Babies

If you would like to submit a photo of your loved one affected by UPD-14 to be included in our family photo album, please contact us at contact@avagracefoundation.org. 

© 2023 by The Ava Grace Foundation. 

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The Ava Grace Foundation is a 501(C)3 registered non-profit organization.

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The Ava Grace Foundation website content is for informational purposes only and is intended to educate consumers about healthcare issues and choices. This information is not a substitute for professional medical advice, diagnosis, or treatment. You should always consult with your physician before making medical decisions or electing to undergo any medical testing or treatment, or if you have any questions or concerns about your health. 

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